Unfolding Values through Systematic Guidance: Conducting a Value-Centered Participatory Workshop for a Patient-Oriented Data Donation
Leimstädtner, David; Sörries, Peter; Müller-Birn, Claudia – 2022
Routinely collected clinical patient data posits a valuable resource for data-driven medical innovation. Such secondary data use for medical research purposes is dependent on the patient’s consent. To gain an understanding of the patients’ values and needs regarding medical data donations, we developed a participatory workshop method, integrating approaches from value-sensitive and reflective design to explore patients’ values and translate them into hypothet- ical, ideal design solutions. The data gathered in the workshop are used to derive practicable design requirements for patient-oriented data donation technologies. In this paper, we introduce the work- shop process and evaluate its application.
Title
Unfolding Values through Systematic Guidance: Conducting a Value-Centered Participatory Workshop for a Patient-Oriented Data Donation
Author
Leimstädtner, David; Sörries, Peter; Müller-Birn, Claudia
Publisher
Gesellschaft für Informatik e.V.
Date
2022
Identifier
10.1145/3543758.3547560
Source(s)
Appeared in
Mensch und Computer 2022
Type
Text
BibTeX Code
BibTexCode:
@inproceedings{leimstadtner_unfolding_nodate,
title = {Unfolding {Values} through {Systematic} {Guidance}: {Conducting} a {Value}-{Centered} {Participatory} {Workshop} for a {Patient}-{Oriented} {Data} {Donation}},
doi = {https://doi.org/10.1145/3543758.3547560},
url = {http://arxiv.org/abs/2207.14681},
urldate = {2022-08-01},
language = {English},
publisher = {ACM},
year={2022},
author = {Leimstädtner, David and Sörries, Peter and Müller-Birn, Claudia},
pages = {6},
}
@inproceedings{leimstadtner_unfolding_nodate,
title = {Unfolding {Values} through {Systematic} {Guidance}: {Conducting} a {Value}-{Centered} {Participatory} {Workshop} for a {Patient}-{Oriented} {Data} {Donation}},
doi = {https://doi.org/10.1145/3543758.3547560},
url = {http://arxiv.org/abs/2207.14681},
urldate = {2022-08-01},
language = {English},
publisher = {ACM},
year={2022},
author = {Leimstädtner, David and Sörries, Peter and Müller-Birn, Claudia},
pages = {6},
}